It's been 22 days since activity on account. 22 days since any entry has been made. I'm truly worried about N. Has something happened? The MND is a serious, incurable and devasting illness. Her last couple months online the beast attacked daily loosing more and more abilities. Her absence could be caused by a few things...
Problems with Laptop or Computer
Unable to use computer do to decreased hand strength
In a hospice
Died
Her voice was almost gone so the Bulbar region was affected. She made two videos a month apart and the last one was harder to understand.
The sad reality of ALS it's order of progression (devastation) cannot be predicted. Some progress slowly at first with smaller physical signs of the disease and it might pick up steam. Others might progress quickly at first with noticeable changes shortly after diagnosis but seem to plateau.
ALS is often the last thing Drs rule out because the deterioration or area affected could be contributed to other diseases or injury. When there is 3 or more unrelated areas of concern ALS or MND is suspected. But other disease and conditions need ruled out to come up with a definitive diagnosis. If the Dr suspects ALS and the person has had a family member with ALS the Dr can look for the SOD1 gene that's present in familial Amyotrophic Lateral sclerosis (FALS).
FALS occurs in approximately 5% of ALS diagnosis, 95% of ALS diagnosis has no familial risk factor. ALS can sometimes take months to diagnose if the changes are subtle.
N has no family history of ALS .
I predicted months ago the blog might sit idle.
Not knowing is heartwrenching.
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