Still Worried

Hope is fading. The account has been idle over 2 weeks and to be honest I'm imagining the worst at this point. In a way I hope It's something minor like computer issues but with ALS progression you never know. :-(  .  Her diagnosis was 12/11 .

ALS/MND is a cruel and unpredictable disease that acts differently in each person. The typical patient is given 3-5 years. Many die within 14 months after diagnosis. Is the 3-5 years referring to  after diagnosis or initial symptoms? With Bulbar the time is much less.

Some live much, much longer, for instance Steven Hawking. He's now 71, he was diagnosed with MND when he was 21. He's had MND for 50 years. He's an educator who has taught thousands of college students and one of the most intelligent men who's ever lived. With the help of technology he's survived and still lives. He's had a remarkable life and career. He's a professor, scientist, author and father.

The lady I'm worried about was a teacher too. She's a mother, grandmother, artist and friend to many.

No wonder Dignitas looks so appealing after a MND/ALS diagnosis because its a shitty way to go. No I am not saying she went to Dignitas or even considered it. I'm worried the disease is progressing more quickly now.